WWFEB

Mission
Facts
Needs
Challenges


Friends of EB need your help. Please send your tax deductible donation to:
Wayne-Westland
Friends of EB
P.O. Box 851092, Westland, Michigan 48185


Helpful Links on EB:


DebRa
www.debra.org/

Department of Dermatology at Stanford
med.stanford.edu/derm/
research


EB Info World
www.ebinfoworld.com

Kisses for Katie
www.kissesforkatie.org

EB Kids
www.ebkids.org/


Copyright © Wayne-Westland Friends of EB 2004 | Revised 07/07

EB NEEDS


• Provide direct financial assistance to families in need.

• Provide funding for gene research into both a treatment and cure.

• Provide camp scholarships for children with Epidermolysis Bullosa (EB).

• Provide opportunities for EB families to come together for support and special events.

• Provide scheduled times for people to help with preparation of bandages.


• Provide for medical supplies not covered by insurance.

WWFEB GARAGE SALE
HUGE SUCCESS!

Garage Sale

The second WWFEB Garage Sale, which was held on May 5th raised $2,600, more than doubling our profits from the first one.  We were blessed with a beautiful day, a tremendous amount of donated items for sale, and a crowd of shoppers that began on Friday as we were setting up and they didn't stop coming until we closed on Saturday.  This event also allowed us the opportunity to educate the local community about EB.  We want to thank all who helped us with the Garage Sale and the many people who donated items for the sale.  You made it a success!

Garage Sale


Scrap Booking
Scrapping for EB

WWFEB would like to thank the Scrapbookers who came together for a benefit at the Missionary Church in Yale, MI on Saturday, April 28 th. The event, which was organized by Janet Soper (Carol Thurmond’s sister), raised $415.00 for WWFEB. The day included good food, a silent auction, prizes awarded for “best page,” and many opportunities for sharing ideas and supplies. The video “More Than Skin Deep” was viewed by all in attendance and gave WWFEB the opportunity to educate more people about the devastating effects of EB.