Wayne-Westland FRIENDS of EB

Friends of EB need your help. Please send your tax deductible donation to:
Wayne-Westland
Friends of EB
P.O. Box 851092, Westland, Michigan 48185

WWFEB Board Members:

Sue Fulton
C.J. Dusseau
Steve Henke
Steve Holbrook
Robin Holbrook
Val Jarrett
Gail LaFayette
Joan Payzant

For further information contact one of our Board of Directors at the following
e-mail address: friends@wwfeb.org

EB FACTS

• Epidermolysis Bullosa (EB) is really several inherited disorders with one terrible symptom: the skin and mucous membranes of its victims are so fragile that the slightest touch can cause severe irritation and painful blistering.

• A life-long disease which is often present from birth, EB causes drastic physical, emotional and financial hardships for people who are born with
the disease and their families.

• Only 100,000 Americans, mostly children, are known to suffer from EB.

• The most severe forms of EB involve permanent scarring that can lead to general debilitation, cancer and premature death.

• Scarring EB is characterized by open sores and blisters that heal slowly if at all. This continuous blistering leads to scarring that causes disfigurement and immobilization of fingers, toes, arms and legs, Blisters (which subsequently scar) form in the mouth, esophagus, throat and stomach leading to infection, malnutrition and anemia.

Hand Crafted Pens

Steve Holbrook has offered to make and donate these hand crafted gorgeous wood pens to WWFEB to help fundraiser for the cure of EB. There are several wood types to pick from:

Paduak , a deep rich orange to red color, grown in Africa

Purple Heart , a naturally purple wood that darkens with time from S. America

Blood Wood , a very dark and heavy deep red exotic lumber from S. America

Wenge , like ebony, except this wood has slight streaks of white, from Africa

Lacewood , from Australia, this wood almost looks like snake skin

Zebra wood , this bold and striking wood is the most popular wood of choice thus far, it is from Africa and its grain alternates ivory and dark brown to black.

If you would like to purchase a pen ($25 each plus shipping) or have questions about one of these pens, please contact our foundation at Friends@wwfeb.org
and let us know which wood type you are interested in.
All proceeds go to WWFEB.