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Friends
of EB need your help. Please send your tax deductible
donation to: |
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Bandage making groups meet the first and third Thursday of every month, from 6:00 to 8 pm at Westland Free Methodist Church. Dates: July 2 and 16 at 6:00 pm of 2009. To view a complete 2009 bandage date calendar, click here. Each
week many people come together
to prepare bandages for Joshua and Sarah to use. The pre-packaged
Vaseline gauze sticks to the wounds of EB patients if they do
not have extra Vaseline added to them. In addition, an |
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Against
All Odds:
Grade-point average: 3.82 Parents: David and Carol Thurmond Major: Graphic design Most influential teacher: Mr. Heine 
• 25th in graduating class of 458 • National Technical Honor Society • Participated in a documentary on the Discovery Channel • Taught Sunday school the past four years • Assisted first-year desktop publishing students • Assisted POHI students for a year • Participated in two canned food drives for a homeless shelter • Independent contractor for the Observer newspaper • Member of F4 (Fish for Faith in Christ) • Maintained a positive attitude in spite of having approximately 50 surgical procedures |
WWFEB
has five purposes:
1. When possible, help financially those families with EB to
each the burden of medical treatment and other needs. WWFEB
has appropriated 58% of the total donations to this purpose. The Thurmond
family has really felt your presence here!
2. When practical, give physical support to those families with
EB. The groups preparing bandages have given countless hours
back to the Thurmond family. Sometimes just being there is most beneficial!
3. Fund EB research to find a cure for the disease.
Wouldn't it be great to one day not have this problem? WWFEB
wrote a check for research to Stanford University for $4800 which was
matched 100%. As other organizations continue this effort, research
will get closer to a total cure.
4. Enhance EB awareness to our community. 2 ½
% of our total receipts are pledged to making people in our neighborhoods
aware. We are getting the word out through the press, Rotary Club,
and our local school district. Most of our awareness is done entirely
through volunteers.
5. Bring families of EB together by maintaining a strong communications
network. In February WWFEB contributed $1,000 to the Have
a Heart for EB event. This December we will co-sponsor a Santa Social
with the KissesforKatie organization. These events may be the most
gratifying opportunities as we see EB families being reacquainted
and providing support to one another.
What
we really want you to know is that we have put your donations to great
work. Our administrative costs are less than 3% of the total receipts.
This is remarkable! Believe it or not, the 37 cent stamp is one of our
highest expenses.
As you give, real relief is received.
Thank you,
Your WWFEB Board
Copyright © Wayne-Westland Friends of EB 2004 | Revised 6/09
Contact
Information: |