Friends
of EB need your help. Please send your tax deductible
donation to:
Wayne-Westland
Friends of EB
P.O. Box 851092, Westland, Michigan 48185
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Copyright © Wayne-Westland Friends
of EB 2004 | Revised 01/10
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PURPOSE
1. When possible, help financially those families with EB to
each the burden of medical treatment and other needs. WWFEB
has appropriated 58% of the total donations to this purpose.
2. When practical, give physical support to those families with
EB. The groups that prepared bandages for several years gave countless hours
back to the Thurmond family. Sometimes just being there is most beneficial!
3. Fund EB research to find a cure for the disease. Wouldn't it be great to one day not have this problem? WWFEB
has donated thousands of dollars to research. As other organizations continue this effort, research
will get closer to a total cure.
4. Enhance EB awareness to our community. 2 ½
% of our total receipts are pledged to making people in our neighborhoods
aware. We are getting the word out through the press, Rotary Club,
and our local school district. Most of our awareness is done entirely
through volunteers.
5. Bring families of EB together by maintaining a strong communications
network. In February WWFEB has contributed several times to the Have
a Heart for EB event which brings families together in Florida. Each December we co-sponsor a Santa Social
with the KissesforKatie organization. These events may be the most
gratifying opportunities as we see EB families being reacquainted
and providing support to one another.
What
we really want you to know is that we have put your donations to great
work. Our administrative costs are less than 3% of the total receipts.
This is remarkable! Believe it or not, the postage stamp is one of our
highest expenses.
As you give, real relief is received.
Thank you,
Your WWFEB Board
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EB
NEEDS
• Provide direct financial assistance to families in need.
• Provide funding for gene research into both a treatment and cure.
• Provide camp scholarships for children with Epidermolysis Bullosa (EB).
• Provide opportunities for EB families to come together for support and
special events.
• Provide scheduled times for people to help with preparation of bandages.
• Provide for medical supplies not covered by insurance.
Contact
Information:
Wayne-Westland Friends of EB
P.O. Box 851092, Westland, Michigan 48185
Phone: 734.844.1899
E-mail Friends@wwfeb.org
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