Wayne-Westland FRIENDS of EB - Welcomes you.

Mission
Facts & Needs
Purpose

WWFEB will no longer be sending out "Thank You" letters for contributions. Donors will receive one tax statement per year. This is to help save cost.
Thank you for all of your donations!

 

 

 

 

 


GoodSearch

 

Handcrafted Pens

Helpful Links on EB:

DebRa
www.debra.org/

Stanford
med.stanford.edu/derm/
research

EB Info World
www.ebinfoworld.com

Kisses for Katie
www.kissesforkatie.org

EB Kids
www.ebkids.org/

Sarah Thurmond
In Memory of

Sarah Marie Thurmond

Entered Life:  7/17/1989 
Entered Heaven: 10/8/2009

"I have fought the good fight,
I have finished the race,
I have kept the faith.
Now there is in store for me the
crown of righteousness, which the
Lord, the righteous judge, will
award to me on that day - and not
only to me, but also to all who have
longed for his appearing."

II Timothy 4:7-8

We will miss you Sarah


Contact Information:

Wayne-Westland Friends of EB
P.O. Box 851092, Westland, MI 48185
Phone: 734.844.1899
E-mail: Friends@wwfeb.org

Copyright © Wayne-Westland
Friends of EB 2004
Revised 01/10

OUR MISSION

To support the needs of families in the greater Wayne- Westland area who have EB (Epidermolysis Bullosa), to promote EB awareness and education, and to encourage those searching for a cure.

When possible, help financially those families with EB to ease the burden of medical treatment and other needs.

When practical, give physical support to those families with EB.

Fund EB research to find a cure for the disease.

Enhance EB awareness to our community.

Bring families of EB together by maintaining a strong communications network.